My birthday…but a wish for you

My birthday…but a wish for you

Some of you have asked about my mom from time to time, and since our story is very public, I like to share occasionally. Stopped by Mom’s apartment in the assisted living facility she lives at these days to drop off a few necessities for her. It turns out she had been planning for my birthday.
Her apartment continues to remain spacious and sparsely decorated. She spends most of her time in her room, watching TV and tatting or reading. She’s given up many other crafts and social activities. I think dementia, caused by her bipolar disorder, makes social activities hard for her. She can’t maintain her focus on so many different people in large groups. She’s aware that her memory is going.
But dementia means that she forgets things. Like her only child’s birthday. Or, it means that she remembers calling me two years ago on my birthday, and well, that is the same as calling me on my birthday this year in her mind. So my birthday came and went unnoticed by Mom.
Or so I thought. Tonight, she handed me a neatly wrapped and tied medicine cup. “Happy Birthday!” she exclaimed.
Many times these handmade presents have been useless to me. I’ve been frustrated by her plethora of unfinished projects and often felt like her crafts took precedence over my needs and time as a child.
But when I opened this neatly tied upcycled gift wrapping, I found inside these dainty little beaded and tatted earrings. I don’t wear much jewelry, but these are beautiful.
One day she won’t remember me anymore. Those days are rapidly approaching. And I will remember for many more decades the pain of growing up in a home where I had no space to call my own and where I often felt I was an afterthought.
But I will also remember this year when the woman whose edges have softened as her memory failed gave me a gift I’ll protect for the rest of my days. Because it is proof of what she thought she was giving me all these 42 years of my life…
…the best she had to give.

My deepest wish is that each of you, no matter how deeply you’ve been wounded by a loved one’s mental illness and hoarding behaviors, find a way to forgive and accept each other just as you are. I wasn’t the easiest child to raise at times, I know. But we give the best we have and hope that it will be enough.

This year…

 

…it is more than enough.

Yours,

Ceci Garrett

TEDx does Hoarding by Yours Truly

TEDx does Hoarding by Yours Truly

I’m so excited to share this with you. Tedx has been one of the most amazing experiences I’ve had!

I know it’s been a while since I’ve posted. Forgive me! You’ve been so kind to follow and read my posts in the past. I’ve been busy. Not too busy for my readers; I deeply appreciate you. Just busy.

Last fall, I committed to speak at conferences in Washington State and California on the lasting effects of growing up with a parent who hoards (PWH). It was tough to speak on such a personal topic. Fortunately, I know you understand.

Before things with my PWH happened back in 2009 and our appearances on “Hoarders“, I had never done any public speaking. Sure, I had taken the required public speaking class in college, but I’d had no opportunity to put those experiences into use beyond my education. Now, I speak all the time. I’ve gotten opportunities to speak to many different groups: social workers, municipal employees and agencies, mental health providers, the community-at-large, and to magazine, TV news, and newspaper reporters.

But recently, I took on a new stage, literally, at TedxSpokane–‘Knowing It Again.’ How appropriate is that theme? So many people think they “get” hoarding, but so few really understand what it means to grow up with a hoarding parent (HP). Mistakenly, many people think it’s all about the stuff that filled our childhood homes.

Why did I decide to do this?

I did it for you in hopes you might have a voice. Additionally, I did it for your friends so that they make better understand what we’ve been through and are still dealing with. As well, I did this for your PWH that don’t yet recognize that there’s a problem and that they need help. Finally, I did it for our children because I believe that their generation can be better and healthier than we area.

Please feel free to share this. As far as I can tell, this is the first Ted Talk done specifically on hoarding. Our message needs to get out.

Not just my story.

Your story.

OUR STORIES.

Change begins with stories told and shared. Let’s start a movement!

Yours,

Ceci Garrett

Do I Matter?

Do I Matter?

That old question came back to me today: Do I matter? Why am I here? Is there a reason for this life of mine? It’s not a question rooted in anxiety or depression today, but rather is rooted in a perspective of looking back, reflecting on what has been so far.

This life, my life, has not been easy. I suppose, most of us would say that if we were asked. It’s not something special or unique to me.

Life, it turns out, is tough for most of us in some way.

But today, looking at the past, revisiting that old fear, I have security in knowing that my life does have a purpose, that my past trials, pains, and humiliations have worked together for some purposes instead of a random accidental patchwork of events that lead me to feeling forgotten and insignificant.

“Your life matters because it is broader in scope than the darkness you might experience today. Your life is more permanent than your struggles.” -John Herrick

Wherever you are today, I hope that you find someone who is willing to share their story and offer you a glimpse into how each of our lives matters. The workman does not test and purify the metals that are common and insignificant, but tests and purifies the gold. Your life, like mine, has a tremendous value. Today, yes, it seems tough. It may seem like there is no reason for the pain you’ve faced. Although I can’t tell you exactly why you are facing this right now, I have been in your shoes. It gets better. You get better. But you already matter.

This. This life does matter. You are precious, like gold. Like the golden ornaments upon the Christmas tree, you matter.

Merry Christmas!

Yours,

Ceci Garrett

Film Review: CLUTTER

Film Review: CLUTTER

Clutter-Film by Paul Marcarelli, Diane Crespo (director)

I was fortunate to get the opportunity to attend the world premiere of Paul Marcarelli’s new film, Clutter. Here’s my review of the film.

After the world premiere screening, Paul Marcarelli, the screenwriter of Clutter, shared with the audience in Seattle that he originally had planned to write a film about a home stager attempting to break into her career. Instead, Marcarelli created a film that attempts to capture hoarding disorder (HD) and the effects of living in and growing up in a hoarded home.
The film gives us a glimpse into the lives of the Bradford family. The Bradfords are really not much different than most other American families, searching for the next “thing” to make them feel good enough, safe enough, something enough. The matriarch of the Bradford family is Linda, masterfully portrayed by Carol Kane (Taxi, Beetlejuice) whose “collection-ing” is intensified by a traumatic life event. Now, Linda (Kane) is left to raise three children in a home that has everything except enough room to breathe.

“You’ll have to take me out of here kicking and screaming!” -Linda Bradford

An unusual event draws the attention of outsiders, leading to the threat of Linda’s home being condemned due to the overflow of Linda’s possessions. Faced with the risk of becoming homeless, Charlie (Joshua Leonard), Lisa (Natasha Lyonne), and Penny (Halley Feiffer) work to remedy the home situation. This is a feat that can only be managed while keeping Linda away from the house and distracted. Linda’s adult children attempt to clear the hoard from the family’s home.
The effects of hoarding disorder on Linda and her children is perfectly captured and communicated as real dysfunction that impacts every area of their lives, not simply their interactions with each other and in the home. Offering a fresh glimpse into the effects of a home that contains no safe place for anyone, the film offers a peek into the reality of life with a parent who hoards for many families. There’s simply no place to rest and renew. The effects of this are all-encompassing.
I deeply appreciate Kane’s portrayal of the eccentricities of the hoarding-disordered mother. I was not surprised by this, as Kane is known for her ability to play off-the-wall characters. Personally, I can’t imagine offering this role to another actress. I have been told my mother, my parent who hoards, reminds many people of Kane. Not to be ignored, Leonard walks the fine line of dysfunction, angry brother, and enabling son with the finesse of a child who has lived this lifestyle. Additionally, Lyonne and Feiffer deliver solid performances of the black sheep and the invisible child, respectively.
Perhaps what this film does best is to present a less triggering portrayal of a family affected by hoarding disorder than has been previously brought to the masses. Rest assured the home is sufficiently cluttered to merit the destruction of healthy relationships as witnessed in this family, but also know that gross filth, extreme personality-disordered parenting, and unlikable characters are absent.
The film remains entertaining, utilizing humor to balance such a serious topic without degrading the harsh realities of the family dynamic to overt comedy. Other moments captured the dirty aspects of life perfectly, revealing broken interactions that brought this adult daughter to tears. Although the film’s purpose is not to educate, Marcarelli and Diane Crespo (director) created a film that offers a truly realistic look into the home situation in hoarding disorder.
Have you seen the film? What were your thoughts?
Ceci Garrett

Embracing a New Perspective

Embracing a New Perspective

It’s been a while since I’ve posted on here  Today, I thought that it might be helpful to share a bit of what’s going on in my life. Fortunately, it’s not a bad thing. That said, it involves an element of change that I’m finding tough: embracing a new perspective about myself. In other words, I am learning to embrace “the real Ceci G”, and become comfortable with who she is. Part of this requires me to define what I am not while also looking more realistically at what I can become. It’s as if, in some ways, I’m looking at the whole world in a new perspective simply by looking once again at me.

Things have remained busy here. For example, I continue to work on my degree, as well as working tirelessly advocating for families like mine. Fortunately, I’m on track to graduate and with good grades. As a result, I’ve been attempting to integrate some feedback from others about my grades and accomplishments.

Although I was a good student in elementary and middle school, I struggled with some issues outside of school during high school which impacted my grades. Combined with some projecting of negative statements from my PWH, I had concluded that I am not really that smart or capable. As an example of these negative statements, my PWH would often say things like, For someone so smart that was really stupid. Certainly, it’s no surprise that I chose to pick up on the overarching trends: I somehow am less than I should be, or altogether too much and too complicated.

The Challenge

A year ago, a mentor of mine told me that I was extremely capable and intelligent. Because she’s someone I respect and deeply value her thoughts and opinions, I wanted to believe her. Additionally, she told me that whatever I chose to do with my life, I would be successful. Truthfully, I wonder if it was a warning to choose carefully. Whatever I would go after, she concluded, I would excel.

At first, the comment was embarrassing. Honestly, I didn’t even know how to take it. Possibly, I eeked out an awkward, “Thank you.”

The seed was planted. Although I still hadn’t really taken this statement into myself and integrated it into my self-concept, it was there. Slowly, it’s been growing  little by little.

Most of the things that contribute to our self-concept, self-worth, and self-esteem are based on interpretations of what others tell us about ourselves. Sometimes this feedback is crap–not worth the air used to share it. Sometimes it comes in a mixed form, and we are unable to sort out truth in the middle of ambiguity. Sometimes it has nothing to do with us at all!

As children, we are especially limited in our ability to discern what is what. We often pick up inaccurate messages, internalize them, and they become who we believe we are. Inadvertently, we carry these messages with us into adulthood. If we’re lucky, we may hit the bottom in some way and realize that something is not quite right. If we’re blessed, we may decide to look inward and search for a “healthier and more beneficial” way of being. And if we are truly persistent, we can uncover our true worth and identity.

Testing a new perspective

When the seed was first planted, it just was there. Yet, with time, I have looked at others’ thoughts and words spoken to me or over my achievements.

I am learning to weigh and integrate new information. When someone makes a statement, about me or anything/anyone else, I am trying to start evaluating it critically. Cautiously, I turned things around and looked at them logically first.

What motive could others have for their words? How likely is it that repeated statements are true even if I struggle to accept them? What kind of risk would I be taking to integrate these positive thoughts into my self-concept? How would they benefit from my adoption of a more positive self-evaluation? Would I benefit from it? Is this an emotion, subjective to each person’s perspective, or a potential factual statement? Could this be true of someone else? If so, could it also be true of me?

Adoption and Integration

At times, it has seemed arrogant to choose to believe these new perspectives. That’s part of the challenge, learning to let go of broken narratives. Yet, I’ve begun to see that it’s quite possible that I am as smart, capable, gifted, and patient as people are telling me. I’m beginning to see that some of those whose opinions I’ve valued most were simply those who were the best at hiding their underlying motivations.

A commitment to accepting new information as plausible or true takes time. I keep practicing my new narrative. I can be quite intelligent, gifted, and patient while also still making my fair share of mistakes. One does not discredit the others completely. Brilliant people have bad days and make bad choices. Some dense people have amazing advisers and are wildly successful despite not being the most brilliant person in the room. Most things, it turns out, are not “either or” circumstances.

Adoption requires courage. It takes chutzpah to commit to claiming a new perspective about yourself, especially when the narrative has been distorted for a long time. Integration requires persistence and patience. Change doesn’t occur immediately. I find I must remind myself of these new facts and interpretations repeatedly before they take root and sprout. That requires effort over time.

What new information are you trying to integrate about your self? Where are you feeling stuck? What’s been helpful in your process?

Ceci Garrett